25 August 2015

#JumpForJules!


Hey Folks - my dear friend and fellow mole-mate Julie is going thru a tough time!  I know some of you follow her blog also.  We met shortly after we were both diagnosed and have been friends ever since.  She's starting her 2nd week of whole brain radiation for new brain mets that showed up a few weeks ago!  Some extra thoughts and prayers her way are much appreciated!  Her family started a Facebook page to provide updates (since Julie and other family members are focusing on fighting!).  Please  remember to protect the skin you're in!  and #JumpforJules!  



1. Create a sign #JumpforJules2. Upload a picture or video of you jumping to show your support3. Tag our pageView ABOUT section to see her story!


I took this picture back at Easter of my niece Jumping!  

Saturday August 29th - Miles for Melanoma NYC

Hello fellow folks in the NYC area!  If anyone is interested - let me know!  Details are listed below!  This is MRF's 1st NYC area run/walk.  I'll be walking (because I don't run haha!).  Ok I might jog a little bit :)  I do this walk for myself and my awesome Melanoma Mole-mates that are fighting hard right now!



Join me in a Melanoma Awareness Walk Saturday August 29th. Follow the link below: register/join team/ Team Name Miles of Hope!

http://events.melanoma.org/faf/home/default.asp?ievent=1140792

Other Details:
First Annual 
Miles for Melanoma New York City
Saturday, August 29, 2015
at Firefighter's Field
The Melanoma Research Foundation (MRF) invites you to join us for the 1st Annual Miles for Melanoma New York City 5k run/walk on Saturday, August 29th at Firefighter's Field! 

Join us for our inaugural year and help make a difference! 

WHO: You! Join us individually or create a team when you register.

WHAT: A 5K run/walk that will allow participants to help raise funds to support research, education and advocacy for melanoma.

WHERE: Firefighter's Field, Roosevelt Island, 405-425 Main Street, New York, NY 10044

WHEN: Saturday, August 29, 2015
Check-in and Registration begins at 7:30 a.m.
Run/Walk begins at 9:00 a.m.

18 years & over- $30
6-17 years- $20
5 & under- FREE

Register early to save! Early-bird registration ends on Thursday, August 27th at 11:00 PM. Race day registration increase by $25 per person on race day. Credit cards and checks only - no cash will be taken due to security issues.

Can't attend? Participate virtually! If you would like to support Miles for Melanoma New York City from the comfort of your home, choose virtual participation! Virtual registrants have a discounted registration rate. They do not participate on race day but are still eligible for all fundraising prizes (event day Champions shirt excluded). - See more at: http://events.melanoma.org/faf/home/default.asp?ievent=1140792#sthash.UkFcf6LP.dpuf

16 August 2015

Colorado Weekend - Winter Park Brewfest

This past weekend I decided to take the opportunity to join some friends in Winter Park Colorado for a little post birthday celebrating for me and bday celebrating for 2 of my best pals from college.  We are so lucky that Stephy J lets us crash at her awesome place in Winter Park!  Bonus of the weekend was a beerfest right at the park by her condo.  

Colorado is always one of my favorite places to visit.  Love being in the mountains with some great friends!  

Morning hike after a great pancake breakfast. 
Just a little scenery around Winter Park.  Every day is a beautiful day!
Enjoying a little #wpbeerfest!  It's great how they supply these chairs for relaxing in the park.  
Cheers!
Erin

Scan Update

May 14th was my last dose of Keytruda.  So July 30th were my 1st scans I've had since stopping.  To say that I wasn't nervous about the results would be an understatement.  Fortunately, I've been way too busy to worry too much. It's amazing how quickly 3 months goes by!  I blinked and May, June, and July were gone!  But then for someone like me that never sits home for too long, it's easy to understand how time flies by when you're having fun!

Ok, first, scans look good!  You'll see in the table below copies of my last scans along with several others like my last 'bad' scan from May 2012 when I found out I had my recurrence.  My last CT scan that showed any growth was December, 18, 2012.  It's been a long journey but seem to still be heading in the right direction!  It was a little odd this time to not have a doctors appointment or phone call to tell me the latest results!  Guess it's a good thing I was super busy with turning another year older and starting a new job! 


Since stoping keytruda, I have noticed my energy level coming back some.  I've also noticed little things like my nails no longer flaking like they were before!  

Hope everyone had a lovely weekend!  Sorry for the delayed updates!  I've been traveling non-stop for work and personal fun!  

Cheers,
Erin

24 June 2015

Mexico City

In May I had the opportunity to join some family in Mexico City!  It was a great week of touring the city and catching up with family.  If you have the opportunity to visit this great city, I say do it!

A brief list of places to visit while there: http://travel.usnews.com/Mexico_City_Mexico/Things_To_Do/

Happy Travels everyone!
Erin








19 May 2015

Final dose of Keytruda!

Ok guys - a little bit of a long post! I have been MIA a lot lately! Busy work/travel schedule! But an update! I had my scans last week. I have been on the Merck Keytruda trial since Jan 2013. Prior to that I did 4 months of Zelboraf and 4 doses of Yervoy!

My scans continue to show nothing new or growing! So it was decided that last week was my last Keytruda dose! (I think that made #41?) While they can't prove I had a total complete response (I have some unchanged slightly swollen lymph nodes that they think have dead disease but are too hard to biopsy and too small to check with a PET scan.  

Those that know me, know I LOVE to take pictures! I was testing out a new app and put this collage together to show how thru it all, I haven't let melanoma define me or slow me down! Just wanted to share as a little hope and encouragement! A sampling of some of the travel I have done in the last few years!


** what I shared on Instagram - I always forget I downloaded the Instagram layout app! A summary of the almost 5 year journey with melanoma! And how it hasn't really stopped me! Upper left hand picture is me in Australia in September 2010. That was when the mole on my back started to grow like crazy! It was there one night in the outback near Uluru that it started to bleed! I had it removed immediately after returning to the states! Other pictures are a sampling of trips since then with trips to Thailand (twice), Scotland/London for summer 2012 Olympics! Yosemite, Russia (winter 2014 Olympics) GrandCanyon Mexico!

Cheers!
Erin

18 May 2015

California dream in'

I'm So the last few weeks have been pretty busy!   Ok, more than my normal running around :).   I think 3 of the last 4 weeks I have been somewhere other than jersey! (You all saw one of my posts about Acapulco!).  Beginning of the month I had to head to Cali for a week trip.  So I figured id take advantage of being in the area by going in late Friday night and seeing some good friends!  Thanks Marie and Max (and pipes and knuckles!) for the hospitality!  Was so great catching up with you all!

Saturday apparently was free comic book day!  Say what?!? We started out with brunch at a great little place called The Grub?   Then it was off to a little touristy type activities!  With a stop at the Hollywood sign!  


Then it was back to check out the local comic store 



After that we relaxed for a bit before heading back down to sunset blvd and to see the new avengers movie at the el capital theytre. 




Was a great weekend!  Sunday max and Marie and to work so I headed up the coast to hike point dume area just north of Malibu.  I joked with a friend that as k was cruising up the pacific coast highway I thought to myself, I lead a pretty awesome life!  :). Enjoy some pictures from the hike!



Cheers Erin