24 July 2016

June Scan Results

Ok - so I am seriously lacking these days in blog updates! Seems to be a common theme haha! Things have been going pretty good. Had scans back in April that looked good with no new suspicious findings. Scans June 30th also looked good but with possible mild colitis showing up on my scans. That is a fairly common thing to happen to folks that have taken these immunotherapy drugs. While it's been over a year since stopping treatments, sometimes these things can pop back up. The good thing with scans is that it was still stated that swollen lymph nodes are unchanged and no new suspicious findings. I will have scans again August 11th just to make sure everything is ok with possible colitis. Although, I don't have any symptoms so could just be false readings on scans (which happens all the time with having scans so often). Sorry for the delay in the updates! June was a busy month with trip to Iceland with my cousin Rachel and crazy work schedule. More coming on Iceland! Lots of fun things seen, and totally want to take a trip back!

06 June 2016

National Cancer Survivors Day

I National Cancer Survivors Day! "Let me tell you something you already know. The world ain’t all sunshine and rainbows. It’s a very mean and nasty place, and I don’t care how tough you are, it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain’t about how hard you hit. It’s about how hard you can get hit and keep moving forward; how much you can take and keep moving forward. That’s how winning is done! Now, if you know what you’re worth, then go out and get what you’re worth. But you gotta be willing to take the hits, and not pointing fingers saying you ain’t where you wanna be because of him, or her, or anybody. Cowards do that and that ain’t you. You’re better than that!" - rocky balboa 

#quotes #nationalcancersurvivorsday #icancervive #ihadcancer #su2c #stupidcancer #fuckcancer #melanoma #mskcc #stage4 #survivor #warrior #rocky #rockybalboa #cancersurvivorsday #jcmakeityours #jerseycity

01 March 2016

5 years of stage 4 survival

5 years ago I was at Memorial Sloan Kettering having a lung biopsy to see is cancer (melanoma) had spread to my lungs.  I'd wake up several hours later (minus 2 small wedges of my left lung) to be told it was in fact cancer. 

Statistics would say I'd have a 10% chance of still being here today.  I was fortunate to get on a clinical trial of Merck's keytruda.  I've gone almost 3 years with stable results.  Nothing new or nothing growing! 

Protect the skin you're in!  Remember to see your dermatologist annually!  Wear your sunscreen & stay out of tanning beds!

25 January 2016

Jonas 2016 hits NYC

So many of you probably are well aware this little storm called Jonas that hit the east coast over the weekend.   Here in Jersey City we got almost 30" of snow!  This Midwest gal wasn't phased by it, but it has made a mess for folks trying to commute back to work Monday!  

Here are a few pictures of the snow!  Enjoy!

The day after - Sunday snow near Grove PATH station 

Saturday afternoon around 5pm on Newark Ave 

Might as well make the best of it, right?

1st round of shoveling done (I'd do 3 to 4
More rounds)

 Slowly cars are disappearing!

Ugh, weather, right?!?

Travel ban and covered sidewalks = walking in the street!

3 more months of boring...

3 months always goes so fast!  Last Monday I had my scans.  I had to have them late in the day so they moved them to the main hospital.  It's always so sad to be there and everyone is usually very sick.  

It was a rough week last week between scans and dealing with an awful ear/sinus infection (nothing worse than the feeling of vertigo!).   Luckily that has gotten better! I saw my doctor on Thursday afternoon.  That day marked 3 years from my 1st dose of Keytruda!  Scan results are the same!  Nothing new or growing!  We will take it!  Maybe one of these days we can advance to scans every 6 months!  But that might make me too nervous!  

29 December 2015

Merry Christmas!

Family time is always important.  Even though it was a balmy 70 degrees in NYC area, I packed up and headed to Minnesota for Christmas.  (ok, it's gotten a little cooler now in the NYC area).  Here is a quick recap of my quick trip home.  

Snuggles with my niece on Christmas morning.  She may look happy but she's really just annoyed because I put the camera in front of the movie...  (even though she did request the snuggles with her favorite aunt!)

It's not easy to get a 3 year to sit still for very long.

Activities of the day also includes building a small pillow fort.  no Dogs allowed!  I'm not sure if Claudia is annoyed or sad she's left out?

Trying to get Ms Winnie in on the photo fun and she's not really having it!  

We made time on Sunday to stop by the Minnesota Zoo.  It was a little chilly so we stuck with the inside things.  

Sunday's @ the Zoo. This is pretty much how I feel after running around with a 3 year old for a few days and then waiting an extra few hours @ MSP airport waiting for my flight to leave.  Lovely delays!

Hope everyone had a lovely holiday!


21 December 2015

Trying to make a House a Home

Some of you are aware that I finally made a move.  After 5 years of living in my apartment I decided to buy a small little place here in Jersey City.  Who knew.  5 years is the longest I've lived in 1 location since graduating high school.   When I moved to NJ I thought I'd stay here 3 years tops.  That was kind of my M.O.

But I found a great little house (expensive from Midwest standards).  I wasn't really exited about the idea of a condo.  So this works perfect!   

A few small pictures:

Bonus is that it wasn't until I closed and was there painting that I noticed I had views of One World Trade Center!  Kind of cool!  (It you look out the right window)

I have such a love hate with the area sometimes!  It's so darn expensive! But love the conveniences of everything!  There are so many great new places opening up around me which is fun to see (And try out).  

Like this small sampling of places I made a stop at last weekend:
1. Orale Mexican Kitchen: 341 Grove St.
2. Downtown Yogurt: 126 Newark Ave (rumor is they now deliver!)
3. South House Bar and Restaurant: 149 Newark Ave
4. Porta - Jersey City: 135 Newark Ave
5. Dullboy: 364 Grove - used to be old Park and Sixth Cafe.  Great little spot.  See if you can figure out why it's called Dullboy without asking :)
6. The Archer Bar: 176 Newark Ave.  This spot reminds me of home a little with deer head on the wall.  Not a very big place, but great cocktails.

So more to come as I continue to make this little place my home!  It's slowly coming together!  Trying to get it more organized before more folks want to see it lol!  Nothing like having 4-5 strangers and a video camera come in your house days after you've moved in and things are everywhere!  Looked like I was a hoarder haha!

Hope everyone has a lovely holiday!