Happy Sunday folks! This week has been quite the busy one! It started off Tuesday with my 3 month scans. With the UN General assembly in town, just getting to Sloans 55th St facility was a challenge in itself! Since most of 2nd avenue was shut down! After I finished that I had a few hours to kill before having dinner with my cousin. What better way to do that then facetiming with my niece and a little time in one of my favorite parks - Central Park!
A week in reviewMonday, September 26, 2016
LDW - Adirondacks camping!Monday, September 19, 2016
It's been nearly 6 years since I went camping. Guess too many other things came up each summer. It's been on my list of things to do here. So I was totally excited to when a friend asked me to tag along.
All About Downtown - Jersey CitySunday, September 18, 2016
This past weekend was the 6th annual all about downtown street fair.
#Reasons2StandUpFriday, September 09, 2016
There are so many reasons to Stand Up! I'm proof that there has been so much progress in ways to fight cancer, but we have so much further to go! Many know my story. When I was diagnosed in Oct 2010 there were very few options for the treatment Melanoma. I sat in a medical oncologists office and was basically given a death sentence. I quickly started researching my options. That lead me to Sloan Kettering in search of clinical trials. In Jan 2013 I started a clinical trial of Mercks Immunotherapy drug Keytruda (anti-pd1). I'd spend 2.5 years on the trial. Taking 41 doses and having stable disease and nothing new!
Jersey City - La Festa ItalianaSunday, August 14, 2016
Follow up scansSunday, August 14, 2016
Wednesday night I was sitting in Sloan Ketterings Main Hospital CT scanning waiting room. They always seem to be running late there. I had my 3 month scans in June and they showed some inflammation in the intestines (most likely side effects from all the treatment leaving me possible colitis). Guess side effect of so many scans - false positives?
June Scan ResultsSunday, July 24, 2016
Ok - so I am seriously lacking these days in blog updates! Seems to be a common theme haha! Things have been going pretty good. Had scans back in April that looked good with no new suspicious findings. Scans June 30th also looked good but with possible mild colitis showing up on my scans. That is a fairly common thing to happen to folks that have taken these immunotherapy drugs. While it's been over a year since stopping treatments, sometimes these things can pop back up. The good thing with scans is that it was still stated that swollen lymph nodes are unchanged and no new suspicious findings. I will have scans again August 11th just to make sure everything is ok with possible colitis. Although, I don't have any symptoms so could just be false readings on scans (which happens all the time with having scans so often). Sorry for the delay in the updates! June was a busy month with trip to Iceland with my cousin Rachel and crazy work schedule. More coming on Iceland! Lots of fun things seen, and totally want to take a trip back!